Cancer's Kryptonite
Cancer's Kryptonite
Cancer's Kryptonite
Survivors!
Breast and Ovarian
Cancer
A Little Introduction
Hello from the K.I.C.K. Sisters!
We are so glad you're here! KICK has successfully funded genetic testing for over 300 individuals nationwide, all of whom proactively pursue genetic counseling for their hereditary cancer risk. With each passing month, the count of individuals undergoing testing continues to grow.
Meet KICK sister, Katie:
Katie’s breast cancer was caught early and her original treatment plan was drastically changed after she tested positive for the BRCA1 genetic mutation. Thankfully, she is now cancer free!
Meet KICK sister, Colleen:
Colleen had a preventative hysterectomy after also testing positive for the BRCA1 genetic mutation. Incredibly, during this surgery, they incidentally discovered stage 1 ovarian cancer. Due to this early diagnosis, Colleen has made a full recovery!
What We Do
Educate, Empower & Fund
Unlocking Hope: educating, empowering, and funding genetic testing for early detection and prevention of hereditary cancer
Educate
- Genetic mutations can be passed from either the mother or father, even when the cancer is a predominantly female cancer.
- All men and women have specific genes whose job is to fight off cancer. When there is a mutation on one of these genes, the risk for cancer increases.
- There are a number of genetic mutations that are associated with an increased prevalence of cancer. The most well known is the BRCA genetic mutation. 10-20% of ovarian cancer and 6% of breast cancer diagnoses are caused by inheritable BRCA1 and BRCA2 mutations.
- Of those with a BRCA 1 or 2 mutation, there is an 80-90% risk of developing breast cancer
- There is a 55-60% risk of developing ovarian cancer for those with the BRCA1 mutation, and 20-30% risk for those with the BRCA2 mutation
Empower
- Only 17% of eligible US men and women have undergone genetic testing.
- Knowledge is power. When there is a hereditary cancer within a family and genetic testing is completed, those who test positive can be proactive in taking steps to reduce their cancer risk or detect it at an early stage.
- When someone in the family tests positive, other family members can then make an informed decision on whether or not they should consider testing. Alternatively, families experience a sense of peace when genetic testing is negative for these types of mutations.
- Knowing if there is a genetic cause for those with a cancer diagnosis can often guide their treatment by identifying other cancer risks as well.
Fund
- The cost of genetic testing has decreased in the last 5 years
- Many insurance carriers will cover cancer genetic testing and genetic counseling if the individual has a personal or significant family history of cancer. However, the out-of-pocket costs differ by type of insurance, regardless of history.
- K.I.C.K. works closely with genetic counselors across the country, who contact us when they have a patient who is in need of financial assistance to cover the cost of genetic testing.
- To date, K.I.C.K. has been able to fund testing for over 300 people in 48 states, thanks to our generous donors. With each passing month, the count of individuals undergoing testing continues to grow.
Our Mission
KICK is dedicated to empowering, educating and providing funding for those with a personal or family history of cancer to seek genetic counseling and testing.
Watch Now
KICK In the News
We would LOVE to help!
Contact Us
Statistics
Numbers Speak
Volumes
0+
BRCA tests completed and paid for
0
U.S. States - where individuals have been tested
0+
requests from genetic counselors every month
$0+
donated to genetic testing
Frequently Asked Questions
I have a history of cancer but I don’t have any kids. Why should I be tested?
It’s important that your entire family is aware of genetic mutations that may increase the likelihood of certain cancers. If you do not have children of your own, your siblings, nieces, nephews, parents, cousins, etc. could be affected by a genetic mutation. Once identified, preventative measures can be taken to reduce the risk of cancer throughout the family.
There is cancer in my family but it’s only on my father’s side. Am I still at risk for hereditary cancer?
A genetic mutation can come from your mother or father, regardless of the type of cancer. When a parent, including your father, has a mutation, there is a 50% chance of passing that same mutation to his children.
Is all cancer hereditary?
The vast majority of cancers are caused by a combination of genetic, environmental, and lifestyle factors. These are known as "sporadic cancers." Environmental factors such as tobacco use, exposure to certain chemicals, diet, physical activity, and sun exposure can greatly influence a person's risk of developing cancer. The overall percentage of people with cancer due to genetic mutations can vary widely depending on the type of cancer and the specific genetic mutations being considered. However, it's generally estimated that a relatively small proportion of cancers are directly caused by inherited genetic mutations.Estimates suggest that around 5-10% of all cancers are hereditary, meaning they are caused by inherited genetic mutations that increase the risk of developing cancer.
Will my health insurance cover genetic testing?
Many insurance carriers will cover the cost of genetic counseling and testing if there is a personal or family history of cancer. However, coverage varies on a case by case basis.
If my health insurance learns I have a genetic mutation, can they increase my deductibles or deny me coverage?
The Genetic Information Nondiscrimination Act (GINA) was signed into law on May 21, 2008. Under this law, health insurances cannot change or deny your coverage based on findings from genetic testing. However, GINA does not apply to the Tricare military health system, the Indian Health Service or employees of the federal government.
Should I be tested if I already have cancer?
Yes. KICK believes that knowledge is power and results of genetic counseling and testing can assist the medical team on determining the proper course of action to treat your cancer. In addition, knowing if there is a genetic component to your cancer is beneficial for all members of your family in taking measures to prevent cancer in the future.
Is it true that the Jewish population is at higher risk?
Yes. Gene mutations are more common in Jewish people of Eastern European descent (Ashkenazi Jews) than in other people. For example, among Ashkenazi Jewish men and women, about 1 in 40 have a BRCA 1 or 2 mutation. Among women diagnosed with breast cancer at any age, approximately 1 in 50 have the BRCA 1 or 2, as compared with the Ashenazi Jewish population in which 1 in 10 women diagnosed with breast cancer at any age have the BRCA1 mutation. For males diagnosed with breast cancer, approximately 1 in 20 have the mutation in the general population, and 1 in 5 in the Ashkenazi Jewish population.
Is BRCA the only genetic mutation?
No. It is the most well known mutation, but there are many others that increase the risk for cancer. Each genetic mutation carries its own risk for different types of cancers.
If I am a man with a genetic mutation, do I really need to worry about cancer?
Yes. Having a genetic mutation elevates one’s cancer risk, independent of the person’s sex. While some hereditary cancer syndromes are more commonly associated with increased risks in women, such as breast and ovarian cancers, genetic mutations can also significantly impact cancer risk in men. This includes cancers such as prostate, colorectal, pancreatic, and many more.
Is genetic counseling necessary?
Yes. Genetic counselors are experts in their field and genetic counseling is highly recommended before and after genetic testing. They provide valuable guidance, help interpret results, and assist with decision-making.
Testimonials
Our Stories
Given our patient’s lack of resources, without KICK’s assistance, she would not have been able to undergo genetic testing. She was thrilled when I let her know we had found funding for her testing, and even more thrilled when I called her with her negative genetic testing results. Because of KICK’s assistance, this patient was able to obtain the information that she needed to help inform her surgery decision and future screening recommendations. This patient did not face an easy road, but with KICK’s assistance, we were able to make a very difficult journey a little bit easier.
Allie Hentschell, MS, CGC
Genetic Counselor
You met my wife and I briefly following the OROC this past August. You both were absolutely wonderful. Hearing your stories and message left an impression upon us both. I felt compelled to reach out to you this week following my wife’s scheduled hysterectomy. My wife has made quite a few selfless decisions over the last few years and it is all because of her willingness to have done and embrace the genetic testing that you two are championing. Her late mother, whom we lost to ovarian cancer in 2011, chose to be tested and learned she carried the BRCA genetic marker. She encouraged “Pam” to have the testing done as well. “Pam” later did and came to find out that she herself carries BRCA-2. In fairness to my wife, I do not want to assume her thoughts and feelings, but to a husband, it has been a gift to know. What knowing has done, is afforded us the ability to plan our family and for her to make health decisions based on prevention rather than necessity.
P.N., Spouse of patient
Your foundation was instrumental in helping one of my uninsured patients access critical genetic testing. She has been diagnosed with early-onset Colon Cancer and that alone was a tremendously overwhelming situation. I happened to have learned about KICK in the weeks before I met her, and was able to present you guys as really the only option for her to be able to afford testing. My patient was overjoyed and so grateful for KICK’s generosity she burst in tears, and so did I. Thank you so much for the amazing mission you have embarked and know that the work you are doing is making the difference in everyone touched by your foundation.
Karlena Lara-Otero, PhD, MS, CGC.
Certified Genetic Counselor
I cannot find the words to express my gratitude for the financial assistance..I am sooo looking forward to having the testing. I realize I am just one person but this is huge for myself and my family. I am the first person in my family to have this done!!!
M.M.
Patient
Thank you so much for your help with my patient. I just called her to let her know the testing would be covered by your foundation and she was nearly in tears and expressed her appreciation. She has been struggling financially due to her medical bills and was worried she would not be able to have genetic testing despite it being requested by her care team to guide her treatment. We are both very thankful for the important work you are doing!”
Gillian Spitzley, MS, CGC
Cancer Genetic Counselor
KICK has really helped me to become better informed about any possible increased cancer risk that I might have. Without this assistance with the cost of genetic screening, I likely would have put off getting genetic cancer screening in lieu of the monthly demands that always seem to come first (like preschool tuition) rather than my own health. I am both ashkenazi Jewish and have a family history of cancer (both my father and grandfather have had prostate cancer). I was informed that my insurance would not cover any genetic testing. I am so grateful to have had KICK's financial support in making this genetic testing a reality this year.